Nov. 30, 2017

What Does Autism Mean to You?

I decided to do a blog post based on other people’s thoughts on what autism means to them and what word they would use to describe autism. These people consisted of mothers, fathers, brothers, sisters, aunts, uncles, cousins, specialists, friends and community members. I got a total of 35 responses including Autism Advocate Anna Kennedy OBE and Actress Kacey Ainsworth (Little Mo from EastEnders).

Rollercoaster

Uniqueness

Understanding

What autism means to me is that it's made me become my children's advocate. It’s given me the courage to speak up about things that I wouldn't have before their diagnosis and fighting for them to get the best support. I will always do it in a heartbeat.

Autism means seeing the world in a different way to others.

Spectrum

Understanding 

Complex

Autism is part of my family. It’s always been there it always will be there and its with me every minute of the day. I don’t view it as a burden I simply view it as part of my everyday life I never ignore it I simply advocate for it - Anna Kennedy OBE

Worry

Sensitive

Autism to me means people communicate differently.

Unique

To me autism is seeing and understanding the world in a heightened sense of being.

To me, having Autism is an important and integral part of who I am as an individual. It is who I am, and I always like to see and make the most of the positive qualities that having it can have on others as well as myself. I feel that it brings out the best in me and I would not change a thing.

Hard but unique.

What does autism mean to me? Being able to know why I have had random struggles socially growing up and being able to fix certain things by working on them.

Complicated

Autism means lifelong advocacy, patience, education.

Complex

a journey to become more informed.

Unique

Autism to me means someone who thinks in a different way but should be treated the same as everyone else.

Understanding

Autism means viewing the world same through a different lens. We learn that it’s important to understand that people with Autism may be different, but they do see the same world we see, just in a different perspective.

Different

Unique

Gifted person that sometimes finds it difficult to communicate their needs or struggles.

Life  

I've come to see each of the people who have autism in my life as a blessing, yes it's been hard at times but then whose life isn't hard? We all have ups and downs in our lives every day. But, I for one would never change any of the experiences I've had with my family. I love the wisdom, kindness and laughter I have shared and received over the years from each and every one of these wonderful children and now brilliantly inciteful adults that they have become.

Unique 

As a mom, autism means to me vulnerability, challenges, and a lot of worrying.

Autism impacts each individual differently through various challenges. With more acceptance (not just awareness), individuals with autism can prosper in life via relationships, jobs and education.  Autism is a disability but so many strategies exist to help those diagnosed find their own way and express their own views in life.

Autism means compassion, understanding and acceptance.

Special

A different way of seeing and being in the world. Autism makes us seek to understand each other better. I'd prefer to visit shops when they put on quiet shopping evenings for people with autism. Maybe it's a clue as to how we can evolve as humans.

Amazing

Those who have autism are actually far more advanced than those of us who are not. They use a larger part of their brain function, and generally have greater recall abilities.

Unique

Challenging

It’s a part of my everyday life. Autism has taught me many important things about life such as perspective on what truly matters & looking at everything from a different view.

Different

Autism means to me: thinking outside of the box – Actress Kacey Ainsworth

Understanding

Uniqueness

Autism is a condition that is often misunderstood by society and to me, it is something that can be learned about, that young people can be allowed to express themselves and be themselves in a safe space.

Autism to me is a constant reminder that there is no normal in this world, which is such a great thing...and I take pride reminding others of that when one is judgmental and asks "what's wrong with him/her?" It's being a voice for the voiceless.  

Autism has shown me how incredible the brain can work and we need to all sit back in awe at the wonders of the obstacles people with Autism overcome each day and can grow and flourish with the proper love and support.

Honest

It means seeing the world in a different way.

Autism means that every day is unpredictable. My sons progress has been slow and sometimes I have to remind myself that it’s not a race. And when my son does achieve a milestone or makes a new gain, it is beyond rewarding. He makes me proud every single day.

Unique

Challenging

Autism means that my everyday life is a bit different and harder than your average neurotypical person. I find socialising and sensory input very overwhelming and I spent a long time feeling like an outsider. But there's always hope and a positive side. From my autism I am a hard-working, caring and unique person and I would never want to take my autism away from me, it's part of who I am.

Fantastic

Delightfully different

Hard

Autism is learning about people who have a unique way of living and viewing the world. Living with Autism means we must be ready to adapt, improvise because at any moment our daughter may be overwhelmed by something in our environment and needs some reassurance. Autism has taught me how to let my guard down and enjoy the power of spending quality time with another person. Understanding the components, one has with Autism means you developed special patience, love, dedication and cannot picture life without them. Our daughter needs support, it means the world to her when people accept her for who she is.

Complex

Relentless

Having a 23-year-old son with autism has had a huge impact on our life. Sleepless nights and struggling to relax. Our son constantly “moving the goal posts “. Strain on our marriage and huge difficulties for our younger son. Never being able to holiday as a family and the future is a huge worry. Beyond all that, I have a love for my son so strong. My love for my family and my faith in god gives me my strength.

Unique

Different

 

Thank you to everyone who took part. 

Freya xx